Skip to main content

Posts

COVID19 Online Resource Center: TAKE THIS SERIOUSLY

People with Empathy is planning a series of educational material for both medical professionals as well as patients and caregivers throughout the global COVID-19 pandemic. The resource center can be found here. Sign up to help here. Follow us on Facebook and LinkedIn for ongoing updates as well.

WHY YOU SHOULD TAKE THIS SERIOUSLY Regardless of what anyone tells you,
COVID-19 is NOT "just like the flu," andYes, young people can get really, really sick from COVID-19. It has seeped into the public consciousness that the flu kills thousands of people every year, and so the coronavirus we are dealing with now is nothing more serious. Here are the differences: The fatality rate from COVID-19 is much higher. The seasonal flu kills 0.1% of those who become infected. Compare that with the estimated fatality rate of about 2% of those infected with the COVID-19 virus who will die. That is 20x as much.The COVID-19 coronavirus spreads much faster. Every person infected, without strong meas…
Recent posts

People with Empathy Calls on Gov. Newsom to Protect Access to Hydrochloroquine (Brand: Plaquenil) for Chronic Patients During COVID 19 Response

People with Empathy has released an urgent appeal from our founders Christine Von Raesfeld and Spandan Chakrabarti to California Governor Gavin Newsom and state legislators to protect access to lifesaving treatments for chronic illness patients light of the COVID 19 outbreak, particularly hydrochloroquine (brand: Plaquenil) for lupus patients.

We wrote, in part: We received particularly alarming news ... that Kaiser Permanente had sent notice to its members suffering from lupus that their treatment with hydroxychloroquine (brand name: Plaquenil) will be discontinued in order to preserve supplies for COVID 19 patients. Further, Kaiser noted in their notice to members that their prescriptions would not be filled even if their physician prescribed it. Patients were then “thanked” for their “sacrifice... that might save lives.” While in response to media reports Kaiser noted that it will make hydroxychloroquine available to both COVID 19 patients and lupus patients in critical condition, w…

Community Drive to Meet the Moment: Shortage of PPE and what You Can Do

WE NEED YOUR HELP! With a shortage of Personal Protection Equipment (PPE) throughout the country, we are seeing more doctors, nurses and other first responders resorting to buying and making their own. We've been told by RN's across the country that ER's and ICU's have priority on the limited PPE such as protective masks available and other departments are being left to fend for themselves, which is just not acceptable.

As an organization just starting we would like to help but are limited on our resources, but what we do have is connection and empathy. We are asking anyone in the public with a supply of hand sanitizer, face mask or any type of PPE to kindly donate your excess to those who need it. Our Health Care workers and first responders desperately need them but please call before making a donation as different organizers and hospitals have different protocols. We are working on compiling a list of facilities that need PPE and volunteers willing to help here in t…

May 2020: Lead in Your Community to Recognize Lupus and Fibromyalgia Awareness Month

May is both Lupus Awareness Month and Fibromyalgia Awareness Month. As a community of patients and advocates that transcend specific health conditions and embraces everyone living with chronic and rare diseases, we encourage you to take a leadership role in your community in the month of May 2020, and ask your local government to recognize it as Lupus and Fibromyalgia Awareness Month.

All of our coalition partners – groups embedded in their communities and delivering services and assistance to patients – will be participating in this effort. We will soon put up a map lighting up the cities where leaders like you have signed up!

Here’s how to get involved (we have done much of the work for you!):
Step 1:Contact your local City Council member or County supervisor. It’s a great opportunity to get to know people serving your community, and most of the time, councilmembers are happy to hear from a constituent (that’s you!). We have even written a Sample Email for you so all you have…